Disease specific information

Here are some links for patient support groups for specific kidney diseases

Nephrotic Syndrome Trust (NeST) is a national patient support for adults and children with nephrotic syndrome.

PKD Charity is a patient support and fundraising charity for individuals affected by all types of polycystic kidney disease

Alport UK is a national patient support and fundraising charity for individuals affected by Alport syndrome or thin basement membrane disease.

The Cystinosis Foundation is a patient support group for individuals affected by cystinosis.

Nephrotic Syndrome Trust