Parents & families

Resources for parents & carers

As well as finding information about your child's kidney disease, parents tell us they need to access a wider range of information and advice.

We have put together some practical and emotional resources for parents/carers of children with kidney disease here:

 

  • How you might feel

    Feel as though you are facing emotions with your child's diagnosis? 

    Read on for some practical advice about recognising and managing your emotions.

    Read more …

  • Caring is tough!

    Being a parent of a healthy child can be hard at times but the added complexities that come from having a child who needs to take regular medication, or have overnight gastrostomy feeds or who is on peritoneal dialysis can make parenting very tough indeed!

    Read more …

  • Coming to hospital

    Staying in hospital in Nottingham

    You may have known in advance that your child was going to be admitted or you may have arrived in an emergency. 

    Whatever way your child came to be admitted to Nottingham Children's Hospital, it can be difficult to adjust to being somewhere that is unfamiliar .

    Read more …

  • Benefits

    As a parent/carer of a child with chronic kidney disesae, there are three benefits you and your child may be entitled to: 

     

    Read more …

  • Money issues

    Your money

    On top of having to look after your child and keep up with other life commitments you may find the extra money you are having to spend begins to have an affect your finances.

    When your child is ill life can be unpredictable and your outgoings can be unpredictable too.

    Read more …

  • Family and friend support

    You may be a close relative or friend of a child who has recently been diagnosed with kidney disease and want to find ways you can help. 

    Read more …